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283 views9 months ago
YouTubeFSHD Society
FSHD Clinical Research and Clinical Trials
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FSHD Clinical Research and Clinical Trials
166 views9 months ago
YouTubeFSHD Society
Understanding Gene Therapy in FSHD, FSHD University
1:03:00
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530 views4 months ago
YouTubeFSHD Society
Preventing Falls: Moving with Balance, Awareness, and Intention, FSHD University with Frank Hanley
59:49
Preventing Falls: Moving with Balance, Awareness, and Intention, FSHD University with Frank Hanley
134 views6 months ago
YouTubeFSHD Society
Updates in Facioscapulohumeral Muscular Dystrophy (FSHD)
30:36
Updates in Facioscapulohumeral Muscular Dystrophy (FSHD)
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FSHD University – Update from Avidity Biosciences
59:08
FSHD University – Update from Avidity Biosciences
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The Burden of FSHD - FSHD University with Amanda Hill and June Kinoshita
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FSHD University: MRI Biomarkers in FSHD with Dr. Seth Friedman of Seattle Children's
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0:29
Care Connector - What's new in BetterLife FSHD?
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53:51
FSHD University: Fulcrum's Phase 3 Clinical Trial, Post-Mortem with Dr. Jeffrey Statland
583 views11 months ago
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59:24
Breathing with FSHD, FSHD University, June 26, 2025
281 views10 months ago
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29:10
What is the difference between FSHD1 and FSHD2?
303 viewsMar 7, 2025
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22056 Student Record Data Futures Interim Submissions Launch and Q&A webinar
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SRPT Bulls Loading? Early FSHD & DM1 Data Signals BIG Upside
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FSHD University: The Role of the Physiatrist in Managing FSHD with Dr. Nassim Rad
126 views9 months ago
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Live Your Best Life with FSHD – Join BetterLife FSHD
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The Opportunities of Strength Training in FSHD, FSHD University
453 views8 months ago
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33:19
Canadian Neuromuscular Disease Registry & BetterLife FSHD
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Our evaluation of and opinions on the EPI-321 publicly available preclinical data
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Occupational Therapy for Real Life: Home/Daily Living Solutions for People w/ FSHD, FSHD University
117 views2 months ago
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1:08:05
FSHD University: Physiotherapy & Exercises with FSHD – Optimising Mobility & Function, April 2025
360 viewsApr 28, 2025
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4:59
Mitch's story - Living with Early Onset FSHD
183 views4 months ago
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1:03:02
Anesthesia During Surgery for People with FSHD, FSHD University Feb 2025
514 viewsFeb 28, 2025
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FSHD Science with Heloise Hoffmann, January 2025 Parents' Roundtable
339 viewsJan 22, 2025
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How to Create and Submit a Reconciliation on e@syFile Employer
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2025 Annual Drug Development Update with Dr Lawrence Korngut
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Shoulder dyskinesia in FSH muscular dystrophy
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User Tutorial: BetterLife FSHD
254 viewsMar 6, 2025
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2024 Annual Drug Development Update with Dr Nick Johnson MD
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1:00:27
FSHD University: BetterLife FSHD with Amanda Hill
430 viewsAug 29, 2024
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