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Destineé Spruell on Instagram: "PASH Syndrome isn’t just a diagnosis… it’s a daily battle layered with pain, pressure, and resilience. It’s the inflammation under the skin that feels like it has its own heartbeat. It’s the lesions and overgrowths that come without warning. It’s the way your body becomes a battlefield long before people ever see the scars. PASH is rare, misunderstood, and heavy to carry. But I’m learning to navigate it with grace I didn’t know I had. Some days I’m strong, some da
64K views
5 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell on Instagram: "Life with PASH syndrome in your belly button is a constant, exhausting balancing act. It’s waking up already checking for drainage. It’s planning outfits around gauze. It’s cleaning, drying, re-cleaning, and hoping today isn’t a heavy leak day. It’s pain in a place people never think about and embarrassment you never asked for. A belly button flare isn’t “small.” It affects how you sit, bend, laugh, breathe, move, and feel in your own body. The smell, the moisture
127.7K views
4 months ago
Instagram
justhowlifegoesofficially
1:34
Destineé Spruell on Instagram: "Come with me to get a haircut, because this moment is deeper than just a fresh fade. I wait a long time between cuts, not because I don’t care, but because life with chronic illness teaches you how to prioritize survival before style. So when I finally sit in that chair, it feels like a reset button for my mind, body, and spirit. It’s shedding old energy, releasing heaviness, and reminding myself that I still deserve to feel good in my skin no matter what I’m batt
19.8K views
3 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell | Pain doesn’t make you weak. Living with a draining belly button and still choosing to love, work, create, and dream makes you powerful... | Instagram
6.5K views
3 months ago
Instagram
justhowlifegoesofficially
0:38
Destineé Spruell | Disabled doesn’t mean defeated. Chronic doesn’t mean incapable. And sick doesn’t mean unloved. #justhowlifegoes #hswarrior... | Instagram
6 months ago
Instagram
justhowlifegoesofficially
0:09
Destineé Spruell on Instagram: "Living life should be filled with many different memories — from friends to family, from loving and losing, from learning and forgiving. Every chapter matters. Every moment shapes us. No matter how deep the love or how sharp the hurt, don’t dwell in the pain longer than necessary. Let it teach you, then let it go. Light the candles. Sing the songs. Laugh loudly. Cry honestly. Celebrate the small wins and honor the hard lessons. Enjoy the moments that feel ordinary
2.1K views
4 months ago
Instagram
justhowlifegoesofficially
1:58
Destineé Spruell on Instagram: "Let’s talk about growth — the kind you don’t always see in highlight reels. This time last year, I was walking with a cane. My leg felt like it was literally falling off the bone from a severe PASH flare-up. Every step hurt. Every movement was calculated. Pain dictated my pace, my plans, my confidence, and my independence. I questioned my body daily. I questioned how much more I could endure. I questioned whether “better” was even possible. Fast forward to now — I
2.7K views
3 months ago
Instagram
justhowlifegoesofficially
1:01
Destineé Spruell | Day 2. Today I chose comfort over style, and that choice felt like power. I don’t come to the gym to perform, impress, or fit into anyone... | Instagram
5.1K views
4 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell | The constant battle of having to check my clothes, sheets, and gauze for signs of drainage — it’s the part of PASH Syndrome that people... | Instagram
25.2K views
5 months ago
Instagram
justhowlifegoesofficially
0:28
Destineé Spruell on Instagram: "On this gym journey, I’ve really been loving Premier Protein shakes so far. They’ve become a go-to for me — easy on my body, filling, and actually enjoyable, which makes staying consistent so much easier. When you’re navigating weight loss and chronic illness, finding things that work with your body instead of against it matters. I’m genuinely enjoying this healthy lifestyle change and learning what fuels me best as I continue to show up for myself. Small choices
16.1K views
3 months ago
Instagram
justhowlifegoesofficially
1:17
Destineé Spruell | I don’t work out to punish my body or chase a certain look. I work out to relieve the pain in my body and especially in my back. Living... | Instagram
25.4K views
4 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell | The deeper I walk into this journey with HS, PASH, and everything life throws my way, the more I realize how vital community truly is. Pain... | Instagram
29.4K views
5 months ago
Instagram
justhowlifegoesofficially
1:00
Sam Spruell on Maekar, Dunk, and Egg After Season 1 Finale
12.9K views
2 months ago
TikTok
tvinsider
1:10
Destineé Spruell on Instagram: "Day 4, and I went hard — harder than any day yet. I showed up locked in, focused, and intentional about every movement. I pushed myself in a way that felt powerful but still controlled, and the energy in the room reflected it back to me. The head nods, the quiet daps of approval from people who recognized the work were pure motivation — a silent confirmation that I’m on the right track. I felt the burn in my muscles and this unexpected warmth in my heart as I took
2.2K views
4 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell | Stress and grief hit the body harder than people realize — especially with conditions like Hidradenitis Suppurativa and PASH Syndrome.... | Instagram
6.2K views
5 months ago
Instagram
justhowlifegoesofficially
1:07
Destineé Spruell | ✨ Real relief, real results ✨ I’m thrilled to team up with Derma Organics and share something that’s already changing my skin game —... | Instagram
98.3K views
6 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell | Look at these armpits. It’s been a journey of years of pain to finally find Remicade. After a year on this medication, I can lift my arms... | Instagram
5.9K views
4 months ago
Instagram
justhowlifegoesofficially
1:49
Destineé Spruell on Instagram: "This wound check is actually from October, and I completely forgot to post it — but I still wanted to share because this flare was real. I was actively flaring underneath my breast, and if you know, you know… that area is uncomfortable, painful, and honestly just annoying in ways that are hard to explain unless you live this life. The friction, the moisture, the constant awareness of it — it takes a toll physically and mentally. Even so, I’m incredibly grateful be
831 views
3 months ago
Instagram
justhowlifegoesofficially
0:07
Destineé Spruell | Oh, how life can throw curveballs—sometimes fast, sometimes from every angle. But even in the chaos, God is holding our hands, guiding us,... | Instagram
6.5K views
4 months ago
Instagram
justhowlifegoesofficially
0:15
Destineé Spruell on Instagram: "Living life and taking chances… that’s really the only way I know how to win anymore. With everything my body puts me through — the flare ups, the drainage, the unexpected pain — I’ve realized life doesn’t pause just because I’m hurting. So I stopped waiting for the “perfect moment” and started choosing myself in the middle of the chaos. Every risk I take, every step outside my comfort zone, every time I show up even when my body says I shouldn’t… that’s me bettin
13.4K views
5 months ago
Instagram
justhowlifegoesofficially
1:30
Destineé Spruell on Instagram: "This massage after my workout is imperative. With everything my body carries — chronic pain, inflammation, tight muscles, and recovery — skipping recovery would set me back fast. If I don’t take the time to release the tension, I’m so much stiffer, sore longer, and moving through pain that doesn’t need to be there. The gym isn’t just about lifting weights or burning calories for me. It’s about learning how to care for my body before it forces me to stop. Recovery
2.7K views
4 months ago
Instagram
justhowlifegoesofficially
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