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Clover TV on Instagram‎: "خبر عوده هنتر"‎

Clover TV on Instagram‎: "خبر عوده هنتر"‎

10.6K views5 months ago

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Another symptom of DRPLA is loss of speech. This is Jessica when she started losing hers. When we asked children’s speech and language why she was losing it they didn’t know. Please follow and share so I can bring awareness to this cruel disease ❤️ | Jessica’s DRPLA Journey

Another symptom of DRPLA is loss of speech. This is Jessica when she started losing hers. When we asked children’s speech and language why she was losing it they didn’t know. Please follow and share so I can bring awareness to this cruel disease ❤️ | Jessica’s DRPLA Journey

28.1K views11 months ago

FacebookJessica’s DRPLA Journey

As DRPLA has progressed one of the things that happens is the shakiness of the legs. They shake more or less all day and I can’t even imagine how it feels or how painful. I’m posting two videos, one with Jessica in pain and the other with Jessica happy, either way it’s heartbreaking to see and I wish she didn’t have to suffer like this. She is a strong warrior and whatever this disease throws at her I know she will fight it to the end. She truly is an inspiration❤️ | Jessica’s DRPLA Journey

As DRPLA has progressed one of the things that happens is the shakiness of the legs. They shake more or less all day and I can’t even imagine how it feels or how painful. I’m posting two videos, one with Jessica in pain and the other with Jessica happy, either way it’s heartbreaking to see and I wish she didn’t have to suffer like this. She is a strong warrior and whatever this disease throws at her I know she will fight it to the end. She truly is an inspiration❤️ | Jessica’s DRPLA Journey

677.6K views7 months ago

FacebookJessica’s DRPLA Journey

Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible and if you can sign the petition it would mean the world to us❤️👠🩷👗❤️ https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwQ0xDSwN9fQVleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeMuLRxrPNMn3FomjdedUxxwL4yhEOYBiagVvhkr7Jj-2KvZtheQHLuYFU7Dc_aem_9suOj8831z4Z-PaZqMGWjA | Jessica’s DRPLA Journey

Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible and if you can sign the petition it would mean the world to us❤️👠🩷👗❤️ https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwQ0xDSwN9fQVleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeMuLRxrPNMn3FomjdedUxxwL4yhEOYBiagVvhkr7Jj-2KvZtheQHLuYFU7Dc_aem_9suOj8831z4Z-PaZqMGWjA | Jessica’s DRPLA Journey

5.1K views6 months ago

FacebookJessica’s DRPLA Journey

DRPLA has taken all of Jessica’s abilities away from her and not just that she has to go through being peg fed several times a day and have her medications too. Even though this isn’t painful for her you can clearly see that this distresses her being fed through a tube. This is Jessica’s daily life now. Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible of this cruel disease and if you can sign and share her petition it would mean the world to

DRPLA has taken all of Jessica’s abilities away from her and not just that she has to go through being peg fed several times a day and have her medications too. Even though this isn’t painful for her you can clearly see that this distresses her being fed through a tube. This is Jessica’s daily life now. Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible of this cruel disease and if you can sign and share her petition it would mean the world to

65K views6 months ago

FacebookJessica’s DRPLA Journey

Jessica talking properly, to now being non verbal and terminally ill with DRPLA🎄🤶🌲🎅🎄🧑‍🎄🌲 #rarediseaseawareness https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwQ0xDSwOej9tleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEexeh9yJwe1tk0YhyTIvGLcWJzVYZ6vv46_-81hADJHCr8zjiimUMqtrFP1xA_aem_LoxVGgtx2Wt1nlDjKDq62A | Jessica’s DRPLA Journey

Jessica talking properly, to now being non verbal and terminally ill with DRPLA🎄🤶🌲🎅🎄🧑‍🎄🌲 #rarediseaseawareness https://www.change.org/p/support-research-to-cure-drpla?fbclid=IwQ0xDSwOej9tleHRuA2FlbQIxMABzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEexeh9yJwe1tk0YhyTIvGLcWJzVYZ6vv46_-81hADJHCr8zjiimUMqtrFP1xA_aem_LoxVGgtx2Wt1nlDjKDq62A | Jessica’s DRPLA Journey

64.8K views5 months ago

FacebookJessica’s DRPLA Journey

So I started Jessica’s DRPLA Journey to raise as much awareness as possible of this cruel disease and even though the last couple of days Jessica has had good days trying on dresses the reality is she is also going to have her bad days and today isn’t so good for her. This disease has taken so much away from her and now she’s struggling to swallow. This is only a 39 second clip but this has been going on for a while and it breaks our hearts to see her suffering. Please follow and share Jessica’s

So I started Jessica’s DRPLA Journey to raise as much awareness as possible of this cruel disease and even though the last couple of days Jessica has had good days trying on dresses the reality is she is also going to have her bad days and today isn’t so good for her. This disease has taken so much away from her and now she’s struggling to swallow. This is only a 39 second clip but this has been going on for a while and it breaks our hearts to see her suffering. Please follow and share Jessica’s

90.4K views8 months ago

FacebookJessica’s DRPLA Journey

So one thing about DRPLA i hate is how unpredictable it is and that’s why we have to make the most of her good days. This evening however hasn’t been that good and the dementia part of the disease has made it’s appearance and all Jessica has done is look at the wall, so I decided to put her sensory light on which seems to be helping her. I’ve had comments saying that dementia just doesn’t come and go but Jessica has been assessed by a dementia specialist and it has been confirmed that her dement

25.4K views4 months ago

FacebookJessica’s DRPLA Journey

DRPLA has not just taken everything physically away from Jessica, it’s also taken away her chance of having a normal life. She’s not going to be able to go out and get drunk with friends or go shopping and trying on clothes like she was able to. She has however got Willow, who in the worst time of Jessica’s life always puts a smile on her face. Please keep following and sharing Jessica’s DRPLA Journey so I can raise as much awareness as possible and if you can sign and share her petition it woul

360.1K views5 months ago

FacebookJessica’s DRPLA Journey

Please sign the petition for Jessica❤️👠🩷👗❤️ #RareDiseases #drpla | Jessica’s DRPLA Journey

10.2K views5 months ago

FacebookJessica’s DRPLA Journey

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