People magazine is the latest to bring attention to Cincinnati's Shane DiGiovanna and his rare, debilitating skin disease.
A 10-month-old girl is facing a cancer diagnosis after her rare birthmark caused “painful bleeding lesions.” Katelyn Clarke — ...
The ninth annual 'Plunge for Elodie' in Wellesley will raise funds and awareness for epidermolysis bullosa, a rare skin disease.
Sisters who suffer a one-in-a-million disorder that causes their skin to blister after just a few minutes in the sun have called on the Australian public for help. Amielle, 12, and Taya Walker, 7, ...
MINNEAPOLIS (WCCO) - A man from Libya with a rare condition that causes his skin to tear and blister at the slightest touch first came to Minnesota more than a decade ago to get medical attention. He ...
Brothers Mohamed Duklef, 36, and Hani Duglof, 32, came to the U.S. from their home country, Libya, in 2014, looking for a solution to a health issue the two have lived with since birth. Their skin is ...