The ninth annual 'Plunge for Elodie' in Wellesley will raise funds and awareness for epidermolysis bullosa, a rare skin disease.

Shane DiGiovanna was born with a rare, debilitating skin condition. It turned him into an advocate.

Ms. McDonough previously served as Senior Vice President of Patient Access, Analytics, and Operations at Krystal Biotech ...

There is a promising new drug for the rare disease mastocytosis, which is associated with skin lesions, among other things.

Focused on therapies for rare skin diseases, this clinical-stage biotech saw a notable director purchase coincide with a ...

SALT LAKE CITY (KTVX) — A Utah woman is sharing her story after she survived an incredibly rare and often fatal skin disorder caused by an allergic reaction to antibiotics. “I’m lucky to be alive, I’m ...

SALT LAKE CITY (KTVX) — A Utah woman is sharing her story after she survived an incredibly rare and often fatal skin disorder caused by an allergic reaction to antibiotics. “I’m lucky to be alive, I’m ...

Friday is the first day of spring, and Tucker's family wasn't sure he would live to see it. His continuing fight requires mounting medical supplies, and help to store them.

Muhammad Taluli arrived from Gaza at Jerusalem's Hadassah Medical Center a few months ago and unwrapped the cloth from his hands to reveal gray and white growths that looked like tree bark. The ...

This clinical-stage biotech advancing therapies for rare skin diseases reported a notable insider sale amid a year of sharp ...

SALT LAKE CITY (KTVX) — A Utah woman is sharing her story after she survived an incredibly rare and often fatal skin disorder caused by an allergic reaction to antibiotics. “I’m lucky to be alive, I’m ...