The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
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FacebookScleroderma Research Foundation
The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting
Scleroderma Research Foundation. . The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in ...
1.9K viewsJan 3, 2025
Scleroderma Symptoms
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Living with a chronic condition like scleroderma can feel like a balancing act - between staying strong and knowing when to ask for help. Self-advocacy isn’t about doing it all alone; it’s about learning to speak up for what you need, asking questions, and accepting support when it’s offered. You deserve care, understanding, and space to feel confident in your own voice. 🌻 Together, we can navigate this journey - one conversation, one connection, one step at a time. #SclerodermaAwareness | Scle
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0:27
Living with a chronic condition like scleroderma can feel like a balancing act - between staying strong and knowing when to ask for help. Self-advocacy isn’t about doing it all alone; it’s about learning to speak up for what you need, asking questions, and accepting support when it’s offered. You deserve care, understanding, and space to feel confident in your own voice. 🌻 Together, we can navigate this journey - one conversation, one connection, one step at a time. #SclerodermaAwareness | Scle
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Join the virtual Cleveland Stepping Out walk and help the Scleroderma Foundation keep its promise to provide support, education, and research to help individuals and families affected by scleroderma. go to www.scleroderma.org/clevelandwalk. | National Scleroderma Foundation
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Volunteers like Carla make our mission possible. As a member of our Patient Advisory Board, she shares why giving her time and voice to the scleroderma community means so much. 💙 We’re grateful for her dedication - and we’d love for you to join her! Whether you want to share your story, help guide programs, or support events, there’s a place for you here. 👉 Learn more about volunteering with us: https://scleroderma.org/volunteering/ #NationalSclerodermaFoundation #Volunteer #Scleroderma | Nati
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Today, our hearts are heavy as we join the rest of the country in witnessing the devastating fires sweeping across Los Angeles. Amid this tragedy, we hold two extraordinary people close in our thoughts—Bob Saget and his sister, Gay. Today would have marked Gay’s 78th birthday, and it has been three years since we and the world lost Bob. Bob’s unwavering dedication to our mission was deeply rooted in his love for his sister and his desire to honor her struggle with scleroderma. For 30 years, he w
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