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#sclerodermaawareness #rarediseaseadvocacy #southfulton #themoexperience | Monika Hilton
This video captures the official reading of the proclamation by the City of South Fulton declaring June 2026 as Scleroderma Awareness Month. Hearing these words spoken publicly means so much not just for me, but for every person living with Scleroderma and every family affected by rare diseases. Advocacy is about making our voices heard, and ...
2 months ago
Scleroderma Symptoms
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Understanding Scleroderma Symptoms and Skin Changes
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6 months ago
Top videos
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Scleroderma awareness month 🤍 | Violetemor Onitsha
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Scleroderma awareness month What do u know about Scleroderma? To know scleroderma is to make individuals with Scleroderma feel seen and understood!🤍 We hoping for a cure 🙏🙏 Please Join me create awareness by sharing this video 🤍❤️ | Violetemor Onitsha
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Scleroderma awareness month What do u know about Scleroderma? To know scleroderma is to make individuals with Scleroderma feel seen and understood!🤍 We hoping for a cure 🙏🙏 Please Join me create awareness by sharing this video 🤍❤️ | Violetemor Onitsha
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National Scleroderma Awareness Month Text Animation. Great for National Scleroderma Awareness Month Celebrations with transparent background, for banner, social media feed wallpaper stories
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"For me, the challenges I have experienced with having pulmonary arterial hypertension and scleroderma are not only everyday physical things that I go through, but also mental," Nola (dx 2010) says. We're highlighting Nola's powerful story as part of PAH Awareness Month—a time to increase understanding of PAH and its impact on people living with scleroderma. Last year, we partnered with Project Scleroderma to create a special video series highlighting the real experiences of people living with s
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6 months ago
Facebook
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Marking Scleroderma Awareness Month
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June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness can lead to delays in treatments and diagnosis. But we won't accept that — by working together as a community, we can change the narrative and create real progress toward ultimately finding a cure for scleroderma. To kick things off this month, in this video, Andrew talks about his journey with scleroderm
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Scleroderma Research Foundation
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For Scleroderma Awareness Month, we asked Annelise to share her tips for living with this condition. Here's a simple way to ease breathing in cold air. | Boehringer Ingelheim
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Jun 20, 2019
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Scleroderma Awareness Month is here, a time to learn more about the realities of living with this progressive, rare disease. Scleroderma can lead to challenges in day | Boehringer Ingelheim
Jun 7, 2019
Facebook
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Ahead of Raynaud’s Awareness Month, which starts this Saturday, we were delighted to have taken part in a feature about Scleroderma and Raynaud’s for BBC Morning Live. We’d like to commend the two women featured in the report, who spoke candidly about the challenges they faced after their diagnosis and how they managed their condition. And we’d like to thank Dr John Pauling, a Consultant Rheumatologist, also featured, who spoke about the difficulties of getting a diagnosis and the symptoms to lo
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June is scleroderma Awareness Month 🎗️ and we’re coming together to shine a light 💡 on this rare autoimmune disease that affects around 19,000 people in the UK. Scleroderma can be life-threatening, and all forms of the condition can impact daily life, but with understanding and support, no one has to face it alone. This month, we’re asking for your help. One simple act can make a big difference: please share our #SayScleroderma film to spread awareness far and wide. And if you feel inspired to
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June is Scleroderma Awareness Month - and we’re kicking it off with a message from She Shutes, a fearless advocate who has turned her personal journey into powerful awareness. Living with scleroderma hasn’t stopped her. It’s fueled her. And now she’s using her voice to make sure the world sees what this disease really looks like - and why it matters. 💙 We’re honored to partner with her this month to spotlight the strength, struggles, and stories that too often go unseen. Check out her content o
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Facebook
National Scleroderma Foundation
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We’re excited to announce our 2025 Scleroderma Awareness Month theme: Stories of Strength! 💙 This June, we’re shining a light on the powerful, inspiring journeys of individuals and families impacted by scleroderma. From courage in the face of challenges to hope that moves mountains - your stories are the heartbeat of this community. Together, we are #StrongerThanScleroderma. To learn more about Awareness Month visit https://scleroderma.org/2025-scleroderma-awareness-month/ #NationalSclerodermaF
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It's June and June is Scleroderma awareness month. #sclerodermaawareness #sclerodermawarrior #weneedacure #scleroderma | Violetemor Onitsha
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Today is the first day of Scleroderma Awareness Month and I wanted to show you how this disease frustrates me day in and day out. It can be agonizing. Be kind to everyone and protect your energy. 💖#scleroderma #disabilityawareness | Scleroderma Strong
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How Scleroderma affect some parts of my Body😌🤦🏻♀️ It’s Scleroderma awareness month June🤍 | Life with Violetemor
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Get ready to shine a light on scleroderma this June! Scleroderma Awareness Month is just around the corner, and we need YOUR help to turn the world TEAL! 💙✨ Watch this message from patient advocate, Evamarie Cole, and be part of something BIG - request a teal light-up in your hometown and help shine a light on scleroderma warriors everywhere! Every illuminated landmark brings us one step closer to raising awareness and supporting those living with scleroderma. #NationalSclerodermaFoundation #Li
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Scleroderma awareness week. Teal color ribbon wave motion. Kidney and Lung Motion.
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🎉 This past weekend we hit the road—spreading awareness and building community across Central Florida and Tampa Bay! 💙 Thank you to everyone who came out—these are the moments that stay with us. But we’re not done yet... Scleroderma Awareness Month isn't over! This Sunday (June 29) we’re taking over: 📍 Weston — Ride to Cure Scleroderma 🚴♂️ 📍 Fort Lauderdale — Morning coffee at Circle House Coffee ☕ 📍 Orlando — Lake Eola Fountain Light-Up & Group Photo starting at 5:00 PM💡 Register for th
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11 months ago
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National Scleroderma Foundation Florida-Puert…
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Join SRF Board Member Susan Feniger and #SayScleroderma for Scleroderma Awareness Month 🗣️ Scleroderma is an autoimmune disorder—a rheumatic disease that causes inflammation in the skin and other areas of the body. And, it's an extremely complex disease that can progress in very variable ways in individual patients. That's why we—and Susan—cannot wait to share "Collaborating for a Cure," the SRF Patient Forum, with you in just 2 days on June 6th. You'll learn all about scleroderma's variability
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A few jumbled thoughts at the end of a long day. Happy Scleroderma Awareness Month? Scleroderma patient 16 years and counting. #sclerodermastrong | Scleroderma Strong
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Scleroderma Research Fndn. on Instagram: "This month, we hold two extraordinary people especially close in our hearts: Bob Saget and his sister, Gay. January 9th marks both Gay’s birthday and four years since we, and the world, lost Bob. Bob’s dedication to advancing the SRF’s mission was driven by his deep love for his sister and his commitment to honoring her experiences with scleroderma. For more than three decades, he was a passionate advocate—raising national awareness, championing research
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February is Rare Disease Awareness Month. I was diagnosed with a rare, connective tissue disorder called Scleroderma 10 years ago. The Mo Experience Foundation is baking
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