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Scleroderma Foundation
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Scleroderma Foundation
Scleroderma
Stories
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Scleroderma
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Scleroderma
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Nicola Whitehill
Scleroderma
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Scleroderma
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Juvenile Scleroderma
Treatment
Stefani Somers
Stellaris
Live Patient
Scleroderma
Scleroderma
Breakthrough Treatment 2024
Bob Saget
Scleroderma
Juvenile Localized
Scleroderma JLS
Ami Shah
First Signs of
Scleroderma
Foundation
Program Infosys
Deanna Frost
Ryan Flynn
Cassedy Amy J MD
Pred Fajront EO-1
Elizia Volkmann
Denise DeCarlo Maryland
Fetal Medicine
Foundation
Keratin Research
Instructions
Stephany Somers
Schecter Guitar
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Ashley Barron Of
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of the Spine
Ashley Barron Before and After
2:11
Facebook
Scleroderma Research Foundation
What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co
Scleroderma Research Foundation. Scleroderma Research Foundation · Original audio. What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand ...
5.8K views
10 months ago
Scleroderma Treatment
11:04
Scleroderma Explained: Symptoms, Causes, and Treatment Options | Comprehensive Guide"
YouTube
Dr Uzma's Medical Academy
414 views
Oct 10, 2024
5:37
An Overview of Scleroderma Part 2: Treatment and management
YouTube
Demystifying Medicine
43.7K views
Dec 8, 2015
39:13
Patient Forum: Welcome & Scleroderma 101 - Understanding diagnosis and treatment (2023)
YouTube
SRFCURE
4.6K views
Jun 20, 2023
Top videos
1:48
Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the n
Facebook
Scleroderma Research
434 views
Jul 9, 2024
53:31
#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
YouTube
National Scleroderma
1.4K views
Jun 21, 2024
0:51
Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
Facebook
Scleroderma Research
3.4K views
5 months ago
Scleroderma Symptoms
0:11
Understanding Scleroderma Symptoms and Skin Changes
TikTok
draishawahmed_
9.5K views
Mar 29, 2025
0:16
Scleroderma Explained | Autoimmune Disease
YouTube
andrew wells
125 views
3 months ago
8:30
Young Woman's Skin Hardens with a RARE DISEASE: True Story of Scleroderma
YouTube
Violin MD
247.2K views
Aug 10, 2019
1:48
Join the 2024 SRF Research Challenge to support research like Dr. Flynn's! Dr. Ryan Flynn (Harvard University, Boston Children's Hospital) shares information about his SRF-funded research project, Cell Surface GlycoRNAs in Autoimmunity, and how it could help people living with scleroderma. Your support of innovative research like Dr. Flynn's, and other projects funded by the SRF, helps advance our understanding of this disease. By joining this year's Research Challenge, you'll be a part of the n
434 views
Jul 9, 2024
Facebook
Scleroderma Research Foundation
53:31
#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
1.4K views
Jun 21, 2024
YouTube
National Scleroderma Foundation
0:51
Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
3.4K views
5 months ago
Facebook
Scleroderma Research Foundation
1:52
Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
3.4K views
9 months ago
Facebook
Scleroderma Research Foundation
2:54
JOHN talks at the SCLERODERMA RESEARCH FOUNDATION benefit
1.2K views
Sep 23, 2022
YouTube
John Mayer France
0:28
Now available to watch: #BehindTheMystery featuring the Scleroderma Research Foundation! ✨ Watch the full segment & share so that everyone knows what #scleroderma is and does: https://bit.ly/behindthemystery-srf or link in bio
55.4K views
Feb 21, 2023
TikTok
srfcure
1:34
Dr. Whitfield on the Bright Horizon of Scleroderma Research
673 views
Jan 27, 2023
YouTube
SRFCURE
Behind the Mystery, featuring the Scleroderma Research Foundation | Carri Levy
14.5K views
2 months ago
linkedin.com
0:50
Still unsure about who to email with your National Scleroderma Foundation-related questions? Here, Caryn Anatriello, the Foundation's Manager of Advocacy and Support provides a simple guide for how to reach our team. Quick reminder of the addresses: - support@scleroderma.org - education@scleroderma.org - research@scleroderma.org - info@scleroderma.org. | National Scleroderma Foundation
365 views
Jan 29, 2024
Facebook
National Scleroderma Foundation
1:23:34
Patient Forum: Scleroderma Research in Action - Understanding Clinical Trials (2025)
903 views
11 months ago
YouTube
SRFCURE
31:13
Back From the Future- Scleroderma Over the Last 20 Years- Carol Feghali-Bostwick, Ph.D.- 2018
1.6K views
Aug 28, 2018
YouTube
National Scleroderma Foundation
5:44
An Overview of Scleroderma Part 1: Breaking it down
117.4K views
Dec 8, 2015
YouTube
Demystifying Medicine McMaster
3:35
Late Comedian Bob Saget Discussed Importance Of Scleroderma Research Foundation Weeks Before Death
1.6K views
Jan 14, 2022
YouTube
CBS New York
1:25
Remembering Sunny: He Shares His Scleroderma Story in this Moving PSA
90 views
2 months ago
YouTube
SRFCURE
37:09
Localized Scleroderma (Morphea), Christina Lam, MD, Michael York, MD
11.8K views
Sep 9, 2021
YouTube
National Scleroderma Foundation
2:43
At just 13, Mack was diagnosed with scleroderma. Now 17, he bravely shares his journey - the daily battles and the hope that keeps him going. His story reminds us why scleroderma research isn’t just important, it’s urgent. Every breakthrough gives kids like Mack a chance at a fuller, healthier life. 💙 We must unite to support research and raise awareness. No child should face scleroderma alone. Have a story to tell? Share your journey with us at communications@scleroderma.org. #NationalSclerode
12.8K views
1 year ago
Facebook
National Scleroderma Foundation
5:48
Moving Forward - Scleroderma Research Foundation
3.1K views
Mar 14, 2012
YouTube
Rare Disease Day
53:56
Overlapping Conditions in Systemic Sclerosis
46.6K views
Oct 23, 2012
YouTube
National Scleroderma Foundation
41:34
Evolving Treatment for Scleroderma: a Look at Current Clinical Trials - Michael Macklin, MD
372 views
11 months ago
YouTube
Scleroderma Foundation of Greater Chicago
1:10
Community Support for Scleroderma Awareness and Cure
800 views
Jan 3, 2025
TikTok
srfcure
1:11
The support of the scleroderma community makes a real difference, not only to us but also to people living with scleroderma, like Greg C., dx 2017. That's why we're starting 2025 with gratitude for YOU! As we begin this new year, we're endlessly grateful to have such an incredible community standing with us in the search for a cure. Thank you for standing with us—together, we can and will end scleroderma. | Scleroderma Research Foundation
1.9K views
Jan 3, 2025
Facebook
Scleroderma Research Foundation
1:12
In this clip from the 2024 Patient Forum, Amy shares her top lifehack for managing life with scleroderma: trust your instincts and speak up for your health. 📣 As Amy explains, advocating for yourself—whether by reaching out to your doctor or confiding in a caregiver—can be a game-changer when navigating the challenges of scleroderma. The 2024 SRF Annual Patient Forum, "Collaborating for a Cure", took place on June 3 as part of our participation in Scleroderma Awareness Month. This event offered
7K views
Jan 15, 2025
Facebook
Scleroderma Research Foundation
0:53
SRF-founding board member Susan Feniger explains what scleroderma is and how our Cool Comedy • Hot Cuisine fundraiser helps move research forward on live TV, reaching millions of viewers! 📺 As part of a cooking demo with CBS Los Angeles, Susan shared what scleroderma is and why she's passionate about finding a cure. A close college friend of SRF-founder Sharon Monsky, Susan immediately said yes when Sharon asked her to help found the Scleroderma Research Foundation. Since collaborating with Sha
1.6K views
Sep 24, 2024
Facebook
Scleroderma Research Foundation
54:39
Webinar: Scleroderma and the Lungs - A Spotlight on ILD, with Dr. Toby Maher (2025)
1.3K views
8 months ago
YouTube
SRFCURE
48:39
Patient Forum: Cell Therapy in Scleroderma - Exploring Tomorrow’s Possibilities (2025)
876 views
11 months ago
YouTube
SRFCURE
58:28
GI Involvement in Scleroderma: The Microbiome & Promising Research, Elizabeth R. Volkmann, MD, MS
4.4K views
Nov 30, 2022
YouTube
National Scleroderma Foundation
1:26
#SayScleroderma
4.7K views
11 months ago
YouTube
WeAreSRUK
1:15
Can supplements help in managing scleroderma? Dr. Volkmann weighs in at the this year's Patient Forum 🎥 In this clip, Dr. Elizabeth Volkmann shares insights on the use of supplements and how they can fit into the management of scleroderma. Check out the video to hear her perspective and learn what factors to consider when thinking about adding supplements to your care plan. “Collaborating for a Cure,” took place on June 2 as part of our participation in Scleroderma Awareness Month. The event of
3K views
7 months ago
Facebook
Scleroderma Research Foundation
42:38
Current Advancements in Scleroderma Treatment
13.6K views
May 28, 2019
YouTube
Scleroderma Foundation of Greater Chicago
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